Sierra'
Story
Short
Version
Sierra Rose was
born on
September 19, 2007. When
she was born, she
was not
breathing. Due to
the lack of oxygen,
she suffered brain damage. She
was in
NICU for 7 weeks and 2 days. The
first
few weeks of her life, we almost lost our precious baby several times. But God was gracious and
let us keep
her.
The doctors have
said that
Sierra will never be able to
walk, talk, or see. We
have seen God’s
miraculous hand at work in her life and she has already surpassed the
doctors’
expectations in other areas, so we are not going to give up praying for
more
miracles.
We have been doing
much research
and have learned that some
people who have had optic nerve damage have been helped by stem cell
treatments. These
are people who have
been told by specialists that there is no hope.
God
has led us to pursue stem cell treatments for our
daughter. Our main
hope is that the
stem cell treatments will help repair her optic nerves and give her
some
sight. (Stem cell
treatments have also
proven helpful to brain injured people in other ways.)
The treatments will
be done
through www.stemcellschina.com
and www.beikebiotech.com.
Long
Version
My whole pregnancy
with Sierra
was a breeze aside from being
a bit anemic. I had no morning sickness whatsoever. I knew that labor is never fun, but never
would have guessed
how things
were going to turn out. Sierra was due on September 8, 2007 but the
midwife had
been telling us all along that first babies are usually about 2 weeks
late. So
when Sept. 8 came and went it wasn't really a surprise. By the time I
was a
week overdue, my midwife told me that if I had not had Sierra by the 21
we
would try some things to induce because legally the 22nd was the last
day she
could deliver. She started me on a high carb diet to prepare for labor.
On September 17th I began having labor
pains around 6
am. The contractions were pretty painful. I had pain both in the front
and
back. The contractions were between 5-10 minutes apart. The midwife
said not to
come in yet that it was just pre labor.
She said that
would know when real labor
began. I
continued to have
the contractions. Because they were so strong, I couldn't get any sleep.
Late afternoon of Sept. 18, real labor
began.
Although it was much more intense than the pre labor
it was nowhere near as painful. The contractions were just back pain.
The front
pain had stopped. By around 9:00 pm or so, we decided it was time to go
to the
birthing center.
I was planning on having a water birth, but the midwife didn't want me
getting
in the water right away because she didn't want the water to slow the labor down. I spent the next two
hours or so
mainly standing
or walking. Around 11 p.m. she finally said that I could get in the
tub. The
water was relaxing. The midwife continued to check the baby's
heart rate every 15 minutes (or however often it is...I can't
remember).
Everything was going fine.
Then during one of the times that the assistant checked the heart rate,
she
looked concerned. She said, "You need to get out of the tub right
now." The baby's heart rate had dropped to around 76. I got out of the
tub
and got dried off. They took me over to the bed. I laid down and they
checked
the heart rate again. The baby's heart rate was
beginning to go back up.
(During the whole time, my husband, father, mother, brother and sister
were
praying.)
Whenever I would switch positions, her heart rate would drop. The only
position
that it would stay good was when I was flat on my back. She had two
more heart
rate drops.
Around 4:45am on Sept. 19, Sierra was born. She was blue and was not
breathing.
They called
911 again. While they were waiting, they began bagging her and she got
some
color but still did not start breathing. My sister began calling lots
of people
and a multitude of people began crying out to God for our baby.
The ambulance
arrived and I told
Jason (my husband) and my
mom to go with the baby. After they left, I still had to deliver the
placenta.
The whole time, I was laying there wondering if my baby was dead or
alive.
About 15 minutes after they left, the midwife said that I had a tear
and asked
if I wanted her to stitch me up. At that point, I just wanted to go
with my
baby. I said no and signed a release form.
We received word that Sierra was alive. They had taken her to one
hospital and
were planning on transferring her to one with a NICU. My father and
sister took
me to the hospital that they were going to transfer her to. It took
much longer
for them to transfer her than we expected.
It
was several hours before Sierra arrived and
several hours after that
before I got to see her.
When I did get to see her, she had all sorts of wires and tubes
attached. I was
glad to see her moving, until I was told that she was having seizures.
She had
been placed in a corner room of NICU and had a nurse with her 24/7. The
doctors
were all very grim. She spent the next 7 weeks and 2 days in NICU.
During that
time, we almost lost her several times.
While she was in the hospital, they told us that parts of her brain had
been
damaged due to lack of oxygen. They said that the three areas of her
brain that
were damaged dealt with vision, sleep, and the ability to make
executive decisions.
We knew that she would have challenges in those areas, but we thought
she would
be just fine otherwise. Besides, only one side of the brain was damaged
in the
areas that dealt with vision and executive decisions.
We took her home on Nov. 9, with a G-tube for feeding. Her sucking
was weak
but her swallowing was good. We found out about a special bottle called
the
Haberman. We were able to use that to feed her by mouth. In January,
they
removed her G-tube because she was taking all of her feedings by mouth.
We took her to an ophthalmologist appointment and he told us that her
optical
nerves were damaged and that she would probably never see.
Then, in January, we took her to a neurologist appointment. We assumed
that was
just going to be for the purpose of discussing her seizure medicine,
Keppra,
and the dose she was receiving. Nothing could have prepared us for the
news we
received that day.
The neurologist bluntly told us that Sierra's brain was not growing
like it
should be. She said that Sierra would never be able to walk or talk,
and that
mentally she would probably stay where she was at that time (about 3
months).
The news was devastating to us, and the neurologist's bluntness and
lack of
emotion didn't help either. We came home and spent the day grieving
with family
and our pastor.
After that, we
began doing all
sorts of research. We
were desperate to
find things that might
help her. The first
treatments that we
began taking her to were hyperbaric oxygen therapy, HBO. These helped with her
muscle tone so
much! Her
occupational therapist was
greatly impressed with the improvements she saw in Sierra after the HBO
treatments.
Upon further
research, we
learned that some people who have
had optic nerve damage have been helped by stem cell treatments. These are people who have
been told by
specialists that there is no hope.
So that is where we
are now. God has
led us to pursue stem cell treatments
for our
daughter. Our main
hope is that the
stem cell treatments will help repair her optic nerves and give her
some
sight. (Stem cell
treatments have also
proven helpful to brain injured people in other ways.)
The treatments will
be done
through www.stemcellschina.com
and www.beikebiotech.com.
How to Help
The best way that
you can help
is to PRAY! We have
seen God work mightily
through
prayers. We covet
your prayers for our
daughter and us.
Another way that
you can help is
to consider holding on a
fundraiser for Sierra, or volunteering to help at a fundraiser.
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